About us

A future built to protect the next generation

At just sixteen years old, Lillian's journey has already inspired the creation of a uniquely forward-looking foundation.

Stewardship, not speculation

Through the Lillian Bay Foundation and aligned custodial and trust structures, assets and intellectual property spanning artificial intelligence, blockchain systems, cryptographic technologies and quantum-ready computing have been developed and secured in her name and legacy, not for speculation, but for stewardship.

These assets are governed responsibly, held within protected entities and designed to serve a long-term humanitarian purpose: advancing systems that protect children, preserve privacy and improve outcomes for future generations.

This work reflects a belief that the technologies shaping tomorrow should be built with children in mind today.

Lillian's story is not about ownership, it is about inspiration, responsibility and the commitment to leave behind systems that are safer, stronger and more humane than those we inherited.

Lilly in New York City

Understanding the condition

Cystic Hygromas explained

Cystic Hygromas are the most common subtype of lymphangiomas, presenting at birth and in early infancy. Enlargement of cystic hygromas is common, and they pose an airway obstruction risk in infants. To avoid the high mortality associated with this condition, they must be promptly diagnosed and treated.

Unfortunately, health insurance coverage is not adequate, and most families struggle to get the proper treatment necessary for their child.

The Lillian Bay Foundation fills that void.

Present at birth

Most cystic hygromas appear at birth or in early infancy, when families are least prepared.

Urgent by nature

Airway obstruction risk means diagnosis and treatment cannot wait.

Underinsured

Coverage gaps leave most families unable to afford the specialized care required.

Working together

Our partnerships

We partner with world-leading specialists and mission-aligned organizations.

Vascular Birthmark Institute logo

Vascular Birthmark Institute

World-leading experts in the diagnosis and treatment of vascular lesions.

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Heart of a Lion Foundation logo

Heart of a Lion Foundation

A mission-aligned partner in protecting and supporting children.

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Meet the girl behind the name

Lilly's journey is where all of this began.

Read Lilly's story